Regulation and new intellectual property laws are needed to reduce the cost of gene-editing treatments and fulfil their promise to improve human health.
Even in wealthy countries, health-care systems are ill-equipped to shoulder the high initial costs associated with gene therapies. In 2021, therapeutics developer Bluebird Bio in Somerville, Massachusetts, withdrew plans to market a gene therapy for β-thalassaemia — another blood disorder — in Europe, after failing to reach an agreement with European authorities over the price.
Low- and middle-income countries, meanwhile, are left entirely in the lurch. This is especially painful given that some of the diseases under consideration, such as β-thalassaemia and sickle-cell disease, are more common in poorer parts of the world than in wealthy nations. In some sub-Saharan regions, for example, it is estimated that about 2% of children are born with sickle-cell disease. This is likely to be an underestimate, given how little screening is taking place.
France Dernières Nouvelles, France Actualités
Similar News:Vous pouvez également lire des articles d'actualité similaires à celui-ci que nous avons collectés auprès d'autres sources d'information.
Pan-European crypto regulation is almost here: Law Decoded, Apr 17–24While MiCA technically still has to be approved by the European Council, there’s little doubt that the world’s first comprehensive crypto framework will become a reality by 2024 or 2025.
Lire la suite »
New draft of House stablecoin regulation focuses on state regulators, issuersThe bill is intended to restart negotiations with Democrats in the Senate and the White House over stablecoin regulation.
Lire la suite »
Microsoft-backed tech group pushes for AI regulation: Here's what it's suggesting'We're an industry group that wants Congress to pass this legislation,' said Craig Albright, vice president of U.S. government relations at BSA.
Lire la suite »
Coinbase asks federal court to force SEC to respond to its crypto-regulation petitionA new filing on Monday evening shows crypto exchange Coinbase has asked the federal court to take action against the SEC.
Lire la suite »
Russia Launching Payment System With 'No Restrictions' — Digital Currencies to Be Completely Unrestricted – Regulation Bitcoin NewsRussia is launching a new payment system that is “bound by no restrictions” where digitalcurrencies could be used completely unrestricted. digitalruble digitalyuan
Lire la suite »
UK FCA Wants to Work With the Crypto Industry to Develop Regulation, Executive SaysUK's TheFCA wants to work with the crypto industry to establish regulation, an executive said. camomileshumba reports
Lire la suite »