It's not 'just asthma'
pproximately 25 million people in the U.S. have asthma, according to the Asthma and Allergy Foundation of America. While that number shows how common the condition has become, the severe form is more rare. An estimate from a September 2021 study in thefound that about 9% of people with asthma meet the criteria for severe asthma.. People with this condition tend to experience more symptoms, including increased activity limitations, greater prevalence of heart disease, and lower lung function.
“It’s difficult to articulate how terrifying it is when you can’t breathe and someone thinks you’re faking,” she says. “I’ve had three near-fatal episodes because of health providers who told me it’s ‘just asthma,’ so it’s not that bad. Eleven people in the U.S. die every day from asthma, and I have the most severe kind. This needs to be taken seriously.”Part of the way Matlach’s severe asthma affects her life is through limitations handling everyday tasks.
“It’s nice when doctors ask what’s important to you in terms of what you want to do,” she says. “That makes it easier to balance having the condition with having a life.”Symptoms don’t always include wheezing One diagnostic test that may help is bloodwork. About 4 in 5 adults with severe asthma have a form called eosinophilic asthma, or “e-asthma,” which is driven by too many white blood cells in the body. These patients will have increased levels of inflammation, which could prompt asthma symptoms as well as other difficulties, such as chronic sinus infections, a stuffy nose, swelling in the face, a rash or hives, and dizziness.
“Fortunately, I have a pulmonologist who asks how I’m feeling, and that doesn’t mean only my body,” Winstead adds. “Rather than asking about my asthma, it’s a conversation about how I’m doing as a person. That check-in, before any clinical discussion, is really helpful for reducing the effects of trauma.”
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