Palliative care is still woefully lacking in Canada
Almost three in every five Canadians are now getting palliative care at the end of their lives – roughly 200,000 people annually.That’s the good news that can be garnered fromThe bad news is we don’t really know what “palliative care” consists of. There are no real standards. In some cases, it may be little more than a checkbox exercise, using a standardized list to determine if a patient qualifies for this care.
Perversely, one of the hardest places to get palliative care in Canada is in a long-term care home, where life expectancy after admission hovers around 18 months. If anything, care homes should be glorified hospices. Right now, they tend to be places where you decline until you get shipped off to a hospital to die.
As the CIHI report states dryly: “Palliative care should be accessible to all Canadians regardless of their age, their sex or gender, the expected path of their illness, their community, their socio-economic status or their culture. Our analysis shows, however, that this isn’t the case.” Why? Because most provinces don’t collect palliative care data for home care, long-term care settings, or hospices, leaving the picture incomplete. Most provinces and territories don’t even know how many palliative care beds they have available.Palliative care focuses on managing symptoms, and reducing pain in particular. It’s not supposed to be just about end-of-life, but providing psychological, social, emotional, spiritual and practical support to patients with a life-limiting condition.
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