OPINION: Canada poised to become world leader in care for rare-disease patients

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OPINION: Canada poised to become world leader in care for rare-disease patients
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Canada is poised to become a world leader in improving care for rare\u002Ddisease patients.

The 2019 federal budget committed to invest up to $1 billion over two years, starting in 2022-23, to help Canadians with rare diseases access the drugs they need. In the 2020 Fall Economic Statement and Speech from the Throne, the government reaffirmed that promise and committed to working with willing provinces, territories, and stakeholders to establish a national strategy on rare disease.

The UN General Assembly’s Resolution on Rare Diseases recognized the human rights of rare disease patients, including their right to “the highest attainable standard of physical and mental health” in a timely manner. We have made real progress to date, and industry stands ready to contribute solutions to close the remaining gaps. In fact, everyone in the rare disease community is ready to pitch in. That’s why I believe Canada’s Drugs for Rare Diseases strategy, once introduced, will build to become the gold standard around the world.

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