Where’s the space for moms like me?
When she was 3 years old, my daughter was diagnosed and evaluated by a developmental pediatrician, who found that she’s on the spectrum — level one, mild autism specifically. Now she’s nearly 5 years old, and we’ve been navigating this world for a while. And one thing has surprised me: I constantly feel lost in the space somewhere between the parents of
As she got older, my husband and I observed our daughter displaying more symptoms of autism, like walking on her tiptoes,, and intense meltdowns, among others. Everyone seemed to have an opinion and would say her behaviors were normal, that she’d “probably grow out of it.” We got a lot of unsolicited advice from non-experts on her selective eating and her social skills .
At some point, I stopped trying to confide in these people about my parenting struggles. Not because they were unsupportive, but because they justWhen my daughter was eventually evaluated and our suspicions were confirmed — she was on the spectrum — we also learned that if she had scored just two points lower in her evaluation, she would not have met the criteria for an autism diagnosis. Basically, she’son the spectrum, so most people who aren’t close to her probably wouldn’t suspect it.
Unfortunately, it wasn’t long before I began to feel like I didn’t fit into these groups, either. As it turns out, when your child is only two points on the spectrum with a level one, mild diagnosis, you don’t get a whole lot of sympathy from parents of kids withAnd, honestly, I get it.
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