“I thought I really missed something, and I thought I blew it as her mom. I couldn’t understand how something could take such a thriving child and not leave any evidence.”
later in the afternoon. But when Gould went to wake her, she was unresponsive in her crib. There were no signs of distress.
Although scientists believe that at least some cases of SUDC result from heart problems or seizure disorders, an autopsy found that Maria had neither. Gould researched the medical literature and learned that accounts for approximately 37% of sudden unexplained infant deaths but is never listed as a cause of death for children older than 12 months.
She also now works as a research scientist at the NYU Grossman School of Medicine and its SUDC Registry and Research Collaborative, where her efforts are helping uncover important new findings about the genetics of the tragic condition., and a lack of standardized investigation systems likely prevents researchers from properly classifying these deaths.
The researchers also examined DNA samples from 73 families in the group and found that roughly 1 in 8 had lost a child to sudden death in at least three generations. What’s more, according to the researchers, 41% of the families had a history of fever-related seizures. “A large part of our success has come from our ability to recruit families and work collaboratively with medical examiner offices,” Gould says.
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