With research still in its early stages, there is no guarantee of recovery even for those able get into a clinic
, they often require care from clinicians in multiple specialties, from pulmonology and neurology to gastroenterology and psychiatry. Stanford’s Post-Acute COVID-19 Syndrome Clinic, for example, tries to use its slim staff most efficiently through a hub-and-spoke model, explains co-director Dr. Linda Geng. Each patient is examined by one of the clinic’s staff physicians and, if necessary, is then referred to a specialist.
Long COVID clinics must rely heavily on primary care to meet surging demand, says Dr. Gavin Yamey, associate director for policy at the Duke University Global Health Institute. There aren’t enough specialists, and many people can’t afford their services anyway. “It begins in primary care,” Yamey says. “There needs to be awareness and recognition of the condition, and health care providers need to understand what the care pathway looks like.
Nieset’s team noticed during intake screenings that Mike had significant lung damage and started him on nighttime oxygen and a home breathing device called a nebulizer. “I feel 10 times better,” Mike says. “I don’t think I’m quite back to pre-COVID, but I’m 90, 95% there.” There are some efforts to share treatment guidelines among physicians. The U.S. Centers for Disease Control and Prevention has interim guidance for treating patients with Long COVID, and several medical groups, like the American Academy of Physical Medicine and Rehabilitation, have released Long COVID treatment guidelines.This type of collaboration is also useful to patients navigating their new condition.
The ordeal has been taxing mentally as well as physically. “I was feeling like I wasn’t getting anywhere,” Olvera says.
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