Alex Robins says she 'feels heard' after the government promised to fund research into FOP.
in cash to fund research and set up a petition aimed to get the matter discussed in parliament, which happened in December 2021."We're extremely happy, we were surprised at how helpful, kind and compassionate the team were who attended the debate and they had clearly done their research.
Sir Mike Penning, the Conservative MP for Hemel Hempstead, who has supported the family said: "This debate opens doors to health minsters and science minsters so trials could begin again."
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