Haemochromatosis: Calls for more testing for 'Celtic Curse' in NI

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Haemochromatosis: Calls for more testing for 'Celtic Curse' in NI
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A charity is distributing thousands of genetic haemochromatosis test kits across Northern Ireland.

Catherine described her initial symptoms as feeling "generally under the weather"."It was like day and night how much I had changed and I knew it wasn't just that I was getting older," she said.Daniel Bradley, Trinity College DublinExcavated near Belfast in 1855, the Ballynahatty woman lay in a Neolithic tomb chamber for 5,000 years

Earlier still, the remains of a Neolithic woman found at Ballynahatty near Belfast show that she carried a different variant also associated with an increased risk of the disorder.Three of the Sheridan siblings from Belfast have the condition, with 66-year-old Bill having recently been diagnosed.One of his sisters, aged 69, believed she had arthritis and fibromyalgia for 15 years before finally understanding the condition.

"I don't know how many people are sitting waiting… when it's easily treatable with no cost to society," he said.Sean O'Hare, 52 from Forkhill in County Armagh, lost his father Tony to haemochromatosis-induced heart failure in 2018, having been diagnosed two years previously. Since the passing of Sean's father, the family have been raising money to fund genetic testing in Newry this month.How can I get tested?

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