Geneticist Krystal Tsosie advocates for Indigenous data sovereignty

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Geneticist Krystal Tsosie advocates for Indigenous data sovereignty
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A member of the Navajo Nation, she believes Indigenous geneticists have a big role to play in protecting and studying their own data.

up playing in the wide expanse of the Navajo Nation, scrambling up sandstone rocks and hiking in canyons in Northern Arizona. But after her father started working as a power plant operator at the Phoenix Indian Medical Center, the family moved to the city. “That upbringing in a lower socioeconomic household in West Phoenix really made me think about what it meant to be a good advocate for my people and my community,” says Tsosie, who like other Navajo people refers to herself as Diné.

The Havasupai case is perhaps the most high-profile example in a long history of Western science exploiting Indigenous DNA. “We have an unfortunate colonial, extractive way of coming into communities and taking samples, taking DNA, taking data, and just not engaging in equitable research partnerships,” Tsosie says.

Krystal Tsosie and students Jonathan Kim and Kai-Se Toledo review art created by students in the Biology and Society course at Arizona State University. The art will be used to create a paper quilt for the Life Sciences building.Some of the art created by students in the Biology and Society course at ASU deals with issues of data sovereignty.Tsosie was determined to become one of those Indigenous geneticists, and in 2016, she began dissertation research at Vanderbilt University in Nashville.

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