Across California, thousands of families are now forced to care for severely disabled loved ones at home, including some with serious autism.
Sue Swezey, 83, has spent the last three weeks at home caring for her son John, who is 57 and severely autistic.
John needs 24-hour supervision. He cannot cross a street safely. The other day, he used a metal fork to free a piece of bread stuck in a toaster. His mother rushed in to pull the plug. Before the coronavirus outbreak struck, John Swezey and people like him with intellectual and developmental disabilitiesthat funded programs providing home health aides and other services. Those programs are now closed, and they could remain so for months.“You are left to your own devices — you are the system,” Sue Swezey said by telephone from her Menlo Park home.
Across California, more than 360,000 people and their families depend on the safety net of programs for people with developmental disabilities. That net is now torn and frayed because of the coronavirus outbreak. Those programs allowed many of the severely disabled to live at home and get help from in-house aides and day care. They also allowed other people with disabilities to live in group homes. Their fate is now far less certain because their close quarters, combined with their underlying health conditions, put them at risk of infection.to provide aid and has told providers to contact clients by phone.
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