Connor Haskins has a rare genetic disorder that impacts his muscles and organ development.
LUBEC, Maine — In September, we told you about a seventh-grader from Lubec who was sworn in as a junior game warden by theEarlier this year, the 12-year-old started traveling to Boston every two weeks for treatment that could prolong his life, inspiring many along the way.
"It eats my muscles. Usually, my muscles are tired and hurting, and some mornings I can't walk," Connor explained. Pompe disease has no cure and is a terminal illness. However, there is a treatment that has been shown to extend the life expectancy of patients. Warden Matt Tenan met Connor, learned about his battle with Pompe disease, and planned to give the youngster a full day as a junior game warden.
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