Saget was described as a 'rock' for people living with scleroderma.
"Bob felt that his sister did not have a good medical experience. It was hard for her to get diagnosed, which was much more common in those days, in the 90s, and there were fewer options and there was less understanding," Wright told".""It did motivate him a lot to try to bring awareness to the disease and to help drive research and awareness to make sure that that didn’t happen again.
Wright, chair of the foundation's research committee, remembered Saget as not just a celebrity advocate for the disease, but as a"rock" who supported every member of the foundation's board and staff and who gave a voice to people living with scleroderma, an autoimmune disease that causes inflammation in the skin and body.
"Bob really had a super deep understanding of how humor could help you get through the worst times of your life," she said."He always was ready with a different way to see things and a different way to use his humor in a really gentle way to help out." "He was in it for the long haul," Wright said of Saget."Bob cared so passionately, and he really cared about this cause and just saw it as his legacy, really."What to know about sclerodermaExperts believe the disease -- which affects around 300,000 Americans -- may be caused by a combination of several factors, including hormone changes, immune system problems, environmental triggers and genetics, according to Wright.
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