“I run because running makes me feel accomplished and as if I’m in a daily competition with cystic fibrosis—and I’m winning.”
for it and have now run it every year for the last 26 years. I will run my 27th consecutive race in July of this year.
I am now 49—I’ll be 50 in September—and today, my routine for cystic fibrosis takes about the same amount of time as when I was younger, except I take a few more pills—almost 50 a day. I now do my physiotherapy treatment twice a day with a mechanical physiotherapy vest that vibrates and works to clear my lungs, allowing me to self administer my treatment. I still use a nebulizer but instead of using one nebulizer a day, I have four nebulizers that I use with three different medications.
My prognosis these days is anyone’s guess. The median life expectancy for cystic fibrosis has gone from 25 years old when I was growing up to 53 years old, but I stopped living by the numbers long ago. In 2019, I I started a new medication that has greatly improved my lung function and has almost completely stopped my coughing. It’s not a cure by any means, but it has definitely helped my lungs, as my lung function has increased by about 15 percent.
If I want to live, I have to see the things in my way as challenges rather than obstacles. And I love challenges. That’s why I founded, which shares inspiring success stories of those living with cystic fibrosis, and supports cystic fibrosis warriors by educating communities about this debilitating condition. The Project also supports research that will, hopefully, one day lead to a cure.
France Dernières Nouvelles, France Actualités
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