After losing son to congenital heart disease, parents make it their mission to fund research

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After losing son to congenital heart disease, parents make it their mission to fund research
France Dernières Nouvelles,France Actualités
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While their time with their son was brief, the couple has made it their life’s mission to keep his memory alive and help other babies like him.

Graeme's Run is an annual event in honor of Graeme McDaniel, who was diagnosed with congenital heart disease at birth.Stephanie and Robby McDaniel lost their son Graeme at just 2 and 1/2 years old to congenital heart disease in 2015.

LaPar’s research focuses on reversing the scarring process within the inner lining of the heart chambers called endocardial fibroelastosis. By studying this process he hopes his team could develop stem cell therapies and eventually treatment for this condition. Because Graeme had trouble keeping food down, the family often had to devise creative ways to help him eat. They would run around with Graeme on the stroller then sneak in little pieces of food while he was entertained. Despite the toddler’s general lack of appetite, Verbout discovered Graeme loved astronaut ice cream, or freeze-dried ice cream developed for space travel.

"That same group of friends came to us with the idea that they wanted to start a little community walk or run in his memory,” Stephanie says.

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